Fredonia firefighters raise $4,700 during 2019 Fill the Boot
During the 2019 MDA Fill the Boot campaign, the dedicated members of the Fredonia Professional Fire Fighters Association IAFF Local 2931 took to the streets and continued a 65-year tradition of giving strength to the MDA community.
“The firefighters of Fredonia, IAFF Local 2931, have once again gone above and beyond for MDA’s families during this year’s Fill the Boot campaign,” said Development Specialist Heather Powers. “We are so grateful for their dedication and for the generosity of those in the Fredonia community who have helped to raise critical funds to help transform the lives of kids and adults with muscular dystrophy, ALS and related muscle-debilitating diseases.”
Funds raised through Fredonia Firefighters Fill the Boot events help MDA save lives and lift up those in need, by providing the MDA with vital resources to advance their mission of driving innovations in science and care for the neuromuscular community. Contributions have helped fund groundbreaking research and life-enhancing programs such as state-of-the-art support groups and Care Centers, including the MDA Care Center at University of Rochester Medical Center and Dent Neurologic Institute in Buffalo. They also help send more than 70 local kids to “the best week of the year” at MDA summer camp at Rotary Sunshine Campus in Rush, New York – all at no cost to their families. Today the IAFF/MDA partnership is finding new ways to save lives by working to expand newborn screenings in the U.S. with Pompe disease or Spinal Muscular Atrophy (SMA), so that they can be immediately eligible for lifesaving and life changing therapies.
MDA and IAFF Partnership
The partnership between the IAFF and MDA began in 1954 when the organization committed by proclamation to support MDA until a cure is found, and the organization’s unwavering commitment to MDA has remained strong to this day. As MDA’s largest national partner, they have raised more than $650 million for the MDA to date.
About the IAFF
The International Association of Fire Fighters represents more than 300,000 professional fire fighters and paramedics who protect 85 percent of the nation’s population. More than 3,200 affiliates and their members protect communities in every state in the United States and in Canada.
MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases, through innovations in science and innovations in care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since its inception to accelerate the discovery of therapies and cures. Research it has supported is directly linked to approved, life-changing therapies across multiple neuromuscular diseases. For more information visit mda.org.